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1. The DRM WebWatcher: Muscular Dystrophy
- www.disabilityresources.org
- Muscular Dystrophy.
- Muscular dystrophy (MD) refers to a group of genetic diseases marked by progressive weakness and degeneration of the skeletal, or voluntary, muscles that control movement. The major forms of muscular dystrophy are myotonic, Duchenne, Becker, limb-girdle, facioscapulohumeral, congenital, oculopharyngeal, distal and Emery-Dreifuss. ... Information on Human Neurological Diseases: Muscular Dystrophy A list of medical links from Neurosciences on the Internet. Muscular Dystrophy An overview and resources from the National Institute of Neurological Disorders and Stroke. Muscular Dystrophy Association (Australia) Information about MD and specific disorders, online publications, and interactive opportunities ranging from chat to video-conferencing. Muscular Dystrophy Association (MDA) (U. ... " Recent additions worth noting include a complete online edition of the book Journey of Love: A Parent's Guide to Duchenne Muscular Dystrophy and a chat room. Muscular Dystrophy Association of Canada This English/French site includes fact sheets and brochures, regional information, and fundraising information. Muscular Dystrophy Campaign (UK) Formerly the Muscular Dystrophy Group, this British charity funds medical research and support services for people with MD and other neuromuscular conditions. ... Muscular Dystrophy Family Foundation Information about an organization that "provides services, resources, home medical equipment and adaptive devices to help people with muscular dystrophy and their family members live independent and productive lives. " Parent Project for Muscular Dystrophy Research Information about an organization whose mission is to "expedite a treatment and cure for Duchenne and Becker Muscular Dystrophy by funding research and education.
2. MUSCULAR DYSTROPHY
- www.ihdi.uky.edu
- MUSCULAR DYSTROPHY.
- The term muscular dystrophy refers to a group of disorders characterized by progressive muscle weakness and loss of muscle tissue. Muscular dystrophy includes many inherited disorders such as: .
- Becker's muscular dystrophy (slowly progressive form of MD; affects legs and pelvis most severely) .
- Duchenne's muscular dystrophy (similar to Becker's, but progresses more rapidly) .
- facioscapulohumeral muscular dystrophy (mild, slowly progressive form; face, shoulders, and upper arms affected) .
- limb-girdle muscular dystrophy .
- Because these are inherited disorders, risks include a family history of muscular dystrophy. ...
- present in only some types of muscular dystrophy .
- There often is a loss of muscle mass (wasting), which may be disguised in some types of muscular dystrophy by an accumulation of fat and connective tissue (pseudohypertrophy). ...
- There is no known cure for muscular dystrophy. ...
- From: Yahoo!Health, "Diseases and Conditions - Muscular Dystrophy".
- Muscular Dystrophy Association, National Headquarters.
3. Muscular Dystrophy / Family Village Library
- www.familyvillage.wisc.edu
- Muscular Dystrophy .
- Search Google for "Muscular Dystrophy" .
- Muscular Dystrophy Association.
- MDA's Medical Advisory and Scientific Advisory committees review projects that will increase knowledge in the neuromuscular field and may lead to treatments or cures for muscular dystrophy and related disorders. ...
- Muscular Dystrophy Forum.
- Hello and welcome to "The Muscular Dystrophy Forum", an on line support group for those affected by any one of the 40+ neuromuscular disease's. ...
- A support group; for the parents of kids newly diagnosed with Duchenne's Muscular Dystrophy, friends and parents of people with DMD, and for anyone that has DMD. ...
- The DMDSupport List is an email list for parents, families, individuals facing the challenge of Duchenne Muscular Dystrophy (DMD). ...
- musc-dystrophy .
- Muscular Dystrophy.
- European Alliance of Muscular Dystrophy Associations (EAMDA).
- The Parent Project for Muscular Dystrophy Research.
- Muscular Dystrophy Ireland.
- Muscular Dystrophy Association of Canada.
- VSN - Muscular Dystrophy of The Netherlands.
- Muscular Dystrophy Association of the USA.
4. Reflex sympathetic dystrophy hub
- www.projectlinks.org
- Reflex sympathetic dystrophy hub.
- Reflex sympathetic dystrophy is a chronic condition characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch. ... One visible sign of reflex sympathetic dystrophy near the site of injury is warm, shiny red skin that later becomes cool and bluish. ...
- NINDS Reflex Sympathetic Dystrophy Syndrome Information Page - by The National Institute of Neurological Disorders and Stroke. ...
- Reflex Sympathetic Dystrophy: Fact and Fiction - Jose Ochoa, M. ...
- Reflex Sympathetic Dystrophy Syndrome - by Frederick A. ...
- Explaining Reflex Sympathetic Dystrophy - by Robert J. ...
- Hyperhydrosis and Reflex Sympathetic Dystrophy (RSD) - by the Department of Neurosurgery, University of Pittsburgh. ...
- Reflex Sympathetic Dystrophy from Division of Cardiothoracic Surgery, Southern Illinois University School of Medicine .
- Reflex Sympathetic Dystrophy from eMedicine Journal - by Steven Parrillo, DO, FACOEP, FACEP, Assistant Professor, Department of Internal Medicine, Thomas Jefferson University; Chair, Emergency Preparedness Committee, Department of Emergency Medicine, Albert Einstein Medical Center. ...
- Reflex Sympathetic Dystrophy by Yong H. ...
- Exercise Program for Reflex Sympathetic Dystrophy - by the University of Texas, Center for Pain Medicine and Rehabilitation at Memorial/Hermann. ...
- Reflex Sympathetic Dystrophy by the American Society for Surgery of the Hand .
- Reflex Sympathetic Dystrophy Syndrome - by American Pain Society. ...
- Reflex Sympathetic Dystrophy Syndrome (RSDS) - by Arthritis Foundation. ...
- Reflex Sympathetic Dystrophy by Arthritis Research Campaign .
5. Muscular Dystrophy in the Yahoo! Directory
- dir.yahoo.com
- Muscular Dystrophy.
- Directory > Health > Diseases and Conditions > Muscular Dystrophy (MD) .
- Health: information about Muscular Dystrophy on Yahoo! Health .
- Facioscapulohumeral Muscular Dystrophy (6) .
- Muscular Dystrophy Ireland - provides information and support to persons with neuromuscular conditions and their families. ...
- Muscular Dystrophy (MD) Information Page - overview of the group of diseases that produce progressive weakness and degeneration of the muscles which control movement. ...
- Duchenne Muscular Dystrophy .
- MedlinePlus: Muscular Dystrophy - offers links to news stories, specific conditions, articles on coping with the illness, and more. ...
- Anthony Montesanto's DMD - living with Duchennes Muscular Dystrophy. ...
- Becker Muscular Dystrophy Information Exchange - questionnaire and database for people with Becker MD to find out more about their disease and other patients. ...
- Haynes Family DMD Info - information and links to related sites from the parents of Matt, who has Duchenne Muscular Dystrophy. ...
- Hope for Muscular Dystrophy - support site for families dealing with Muscular Dystrophy. ...
- Jesse's Journey - raising funds for Duchenne Muscular Dystrophy. ...
- Duchenne/Becker Muscular Dystrophy - multimedia guide where you can learn what it is, what causes it, what it is like to have it, and how it is inherited, diagnosed, and treated. ...
- NOAH: Muscular Dystrophy - offers links to articles providing basic information about the condition, specific disorders, and options for care and treatment. ...
- Creatine Answers for Muscular Dystrophy - Dr. Myers answers your questions about creatine and muscular dystrophy.
6. International Myotonic Dystrophy Organization
- www.myotonicdystrophy.org
- International Myotonic Dystrophy Organization.
- How do I Know if I have Myotonic Dystrophy? .
- Congenital Muscular Dystrophy.
- Management of Myotonic Dystrophy.
- These pages is devoted to information about Myotonic Dystrophy (DM1 and DM2) and Congenital Myotonic Dystrophy (CMyD), both forms of muscular dystrophy. ... There are two types of Myotonic Dystrophy DM1 and a new second type called DM2 or PROMM for Proximal Myotonic Myopathy. ...
- Don't miss the personal Stories section this contains great personal information of people and families with Congenital Myotonic Dystrophy. If you have myotonic dystrophy you should carry the Alert Card that folds into wallet size. ... Also if you are a medical professional click here to go to the most recent information on Myotonic Dystrophy. (This is a more technical site with a lot of medical terminology) Just added is a new section of the cellular basis of muscular dystrophy also a new student section. Very important not to miss reading the Cardiac Problems section, many people with Myotonic Dystrophy need to know this information!!. ...
- A New Book Myotonic Dystrophy "The Facts" by Dr. ... This is a wonderful book that contains essential Information about Myotonic Dystrophy. ... Also if you are in England The Myotonic Dystrophy Support Group in England is selling the book for 10 English Pounds. ...
- The International Myotonic Dystrophy Organization (IMDO) publishes a newsletter on a monthly basis. ...
- Here it is hot off the press the Alert card for members with Myotonic Dystrophy to carry with them!! It alerts medical and official personnel about the disease and some of its manifestations. ...
7. Fuch's Endothelial Dystrophy
- www.revoptom.com
- Fuchs Endothelial Dystrophy.
- Late hereditary (Fuchs) endothelial dystrophy is usually seen in the fifth or sixth decade of life. ... The dystrophy itself stems from the primary malfunction of the corneal endothelium. ...
- The treatment for Fuchs endothelial dystrophy varies, depending upon the severity of the disease, and may range from hypertonic drops to surgical intervention. ...
- Corneal grafts for Fuchs dystrophy account for approximately 10 percent of all corneal grafts performed. ... Patients with both Fuchs endothelial dystrophy and cataracts will do well with a combined penetrating keratoplasty and cataract extraction.
- Excessive central guttata in the absence of corneal edema is termed endothelial cell dystrophy. Endothelial cell dystrophy may remain stable or progress to Fuchs dystrophy.
- Differential diagnosis should include posterior polymorphous dystrophy, which is a posterior corneal dystrophy with gray, hazy, scalloped bands, variable corneal edema and iris involvement. ...
- Epithelial Basement Membrane Dystrophy (EBMD) .
- Fuchs Endothelial Dystrophy .
8. Corneal Dystrophy in Dogs
- www.inkabijou.co.uk
- Corneal Dystrophy in Dogs.
- Distinction between Corneal Dystrophy and Corneal Degeneration.
- Confusion often arises over the use of the term "corneal dystrophy" in dogs. ... The confusion arises because the term "corneal dystrophy" is sometimes used to refer to a disease with similar clinical signs but is not hereditary. ...
- In most breeds, corneal dystrophy appears as gray-white, crystalline or metallic opacities in the center of the cornea or close to the periphery. ... In the airedale terrier it is thought to be a sex-linked trait 1,3 and in the Siberian Husky, Corneal Dystrophy has been shown to be a recessively inherited trait with variable expression 4. ...
- In a few breeds, however, a dystrophy can lead to secondary breaks in the epithelial (outer) layer of the cornea. ... In other breeds, a painful ulcer may not develop and the dystrophy itself is not treatable. ... Surgical removal of the dystrophic area may temporarily decrease the opacity in cases of epithelial dystrophy. ... Characteristics of corneal dystrophy in 6 dog breeds:.
- Shetland Sheepdogs have corneal dystrophy which may begin as early as 4 months of age and usually progress throughout life 5. ... This condition is an epithelial dystrophy, meaning it is in the superficial layer of the cornea. This corneal dystrophy is inherited but the mode of inheritance is unknown. ...
- In Beagles, corneal dystrophy may begin as early as 3. ... In Beagles dystrophy rarely causes corneal ulcers and the mode of inheritance is unknown. ...
- Siberian Huskies have a form of corneal dystrophy which is properly called "crystalloid corneal dystrophy. ... This form of dystrophy usually begins between 5 and 27 months of age. ...
9. Jerry's Kids
- rarediseases.about.com
- You are here:About>Health & Fitness>Rare / Orphan Diseases> Rare Diseases M - N> Rare Diseases: M> Muscular Dystrophy> Jerry's Kids HomeEssentialsRare Diseases: Basic InformationRare Diseases Support GroupsOnline Specialty Items ShoppingLegislationRare cancers Articles & ResourcesIs it a Rare Disease?Rare Diseases A - BRare Diseases C - DRare Diseases E - HRare Diseases I - LRare Diseases M - NRare Diseases O - RRare Diseases S - VRare Diseases W - ZInformation by Disease TypeOrphan DrugsLegislationBooks and Movies Buyer's GuideBefore You BuyTop PicksSites for Online Specialty ShoppingChildren's Books on Down SyndromeBiography/Memoir About Rare DisordersProduct ReviewsArticlesForumsHelp FREE Newsletter.
- Internet links on all types of muscular dystrophy.
- Muscular Dystrophy Family Foundation: FAQs.
- More than one type of muscular dystrophy .
- When most Americans think of muscular dystrophy, they picture Jerry Lewis surrounded by children during the annual Muscular Dystrophy Association's Labor Day Telethon. Muscular dystrophy, though, is not just one disorder, but a group of nine inherited muscle disorders. ... This article will give an overview of the different types of muscular dystrophy (MD). ...
- Duchenne muscular dystrophy is the most common childhood form of muscular dystrophy, beginning usually between 2 to 6 years of age in boys. ...
- Becker muscular dystrophy is very similar to Duchenne MD except that Becker can appear later in youth, even as late as age 25, and progresses more slowly than Duchenne. ...
- Congenital muscular dystrophy is actually a group of muscular dystrophies that are present at birth that may affect both boys and girls. ...
- Emery-Dreifuss muscular dystrophy is a less common form of childhood MD that affects boys. ...
- Limb-girdle muscular dystrophy begins in the teen years or early adulthood of both boys and girls. ...
- Facioscapulohumeral muscular dystrophy (FSH MD) also begins in adolescence or early adulthood of both boys and girls, but affects the muscles of the face ("facio-"), shoulder blades ("scapulo-"), and upper arms ("humeral"). ...
- Myotonic muscular dystrophy (Steinert's disease) is the most common form of adult muscular dystrophy. ...
- Oculopharyngeal muscular dystrophy generally begins in a person's forties or fifties, with drooping eyelids being the first sign ("oculo-"), progressing to facial muscle weakness and difficulty swallowing ("pharyngeal"). ...
- Distal muscular dystrophy is the name for a group of muscle diseases which begin in adulthood and have similar symptoms of weakness of forearms, hands, lower legs, and feet. ...
10. ©Muscular Dystrophy Ireland
- www.mdi.ie
- Muscular Dystrophy Ireland .
- Muscular Dystrophy Ireland provides support to persons with neuromuscular conditions and their families through the provision of a range of support services. ...
11. Muscular Dystrophy
- www.hhmi.org
- Muscular Dystrophy.
- Muscular Dystrophy.
- Kunkel at Children's Hospital in Boston and his colleagues cloned the gene that is mutated in Duchenne's muscular dystrophy, the most severe form of the disease. Kunkel's research group found that the mutated gene encodes a protein called dystrophin, which was later found to be missing in Duchenne's muscular dystrophy and abnormal Becker muscular dystrophy. ...
- Shortly after identifying the Duchenne's gene, Kunkel and his colleagues corrected muscular dystrophy in mice by injecting the animals' muscles with genetically engineered muscle cells that produced dystrophin. ...
- Although Duchenne's muscular dystrophy ravages most types of muscle, the muscles that control eye and finger movement are not affected by the disorder. ... When any of the DGC proteins are missing, muscular dystrophy can develop. In 1994, Campbell and his colleagues found that limb-girdle muscular dystrophy, for example, results from a defect in a DGC component named a-sarcoglycan. Later, Campbell and Kunkel, working independently, determined that limb-girdle muscular dystrophy could also be caused by a mutation in the DGC protein b-sarcoglycan. ...
12. Special Child: Disorder Zone Archives - Muscular Dystrophy
- www.specialchild.com
- Muscular Dystrophy.
- Muscular Dystrophy (MD) refers to a group of genetic diseases that cause progressive weakness and degeneration of voluntary muscles that control movement. ...
- Duchenne Muscular Dystrophy (DMD).
- Becker Muscular Dystrophy (BMD).
- Congenital Muscular Dystrophy (CMD).
- Limb-Girdle Muscular Dystrophy (LGMD).
- Myotonic Muscular Dystrophy.
- Facioscapulohumeral Muscular Dystrophy (FSH).
- Emery-Dreifuss Muscular Dystrophy (EDMD).
- Distal Muscular Dystrophy (DD) .
- Oculopharyngeal Muscular Dystrophy (OPMD).
- If you are interested in meeting other parents and individuals who are involved in raising a child with Muscular Dystrophy, the following listserv is available:.
- musc-dystrophy.
- For more information on Muscular Dystrophy, please visit these helpful sites: .
- The Muscular Dystrophy Association http://www. ...
- Parent Project for Muscular Dystrophy Research http://www. ...
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